My Medical Choice By ANGELINA JOLIE

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My Medical Choice
By ANGELINA JOLIE
Published: May 14, 2013
My mother fought cancer for almost a decade and died at 56.
She held out long enough to meet the first of her grandchildren and
to hold them in her arms. But my other children will never have the
chance to know her and experience how loving and gracious she
was.
We often speak of “Mommy’s mommy,” and I find myself trying to
explain the illness that took her away from us. They have asked if
the same could happen to me. I have always told them not to worry,
but the truth is I carry a “faulty” gene, BRCA1, which sharply
increases my risk of developing breast cancer and ovarian
cancer.
My doctors estimated that I had an 87 percent risk of breast
cancer and a 50 percent risk of ovarian cancer, although the risk
is different in the case of each woman.
Only a fraction of breast cancers result from an inherited
gene mutation. Those with a defect in BRCA1 have a 65 percent risk
of getting it, on average.
Once I knew that this was my reality, I decided to be
proactive and to minimize the risk as much I could. I made a
decision to have a preventive double mastectomy. I started with the
breasts, as my risk of breast cancer is higher than my risk of
ovarian cancer, and the surgery is more complex.
On April 27, I finished the three months of medical procedures
that the mastectomies involved. During that time I have been able
to keep this private and to carry on with my work.
But I am writing about it now because I hope that other women
can benefit from my experience. Cancer is still a word that strikes
fear into people’s hearts, producing a deep sense of powerlessness.
But today it is possible to find out through a blood test whether
you are highly susceptible to breast and ovarian cancer, and then
take action.
My own process began on Feb. 2 with a procedure known as a
“nipple delay,” which rules out disease in the breast ducts behind
the nipple and draws extra blood flow to the area. This causes some
pain and a lot of bruising, but it increases the chance of saving
the nipple.
Two weeks later I had the major surgery, where the breast
tissue is removed and temporary fillers are put in place. The
operation can take eight hours. You wake up with drain tubes and
expanders in your breasts. It does feel like a scene out of a
science-fiction film. But days after surgery you can be back to a
normal life.
Nine weeks later, the final surgery is completed with the
reconstruction of the breasts with an implant. There have been many
advances in this procedure in the last few years, and the results
can be beautiful.
I wanted to write this to tell other women that the decision
to have a mastectomy was not easy. But it is one I am very happy
that I made. My chances of developing breast cancer have dropped
from 87 percent to under 5 percent. I can tell my children that
they don’t need to fear they will lose me to breast cancer.
It is reassuring that they see nothing that makes them
uncomfortable. They can see my small scars and that’s it.
Everything else is just Mommy, the same as she always was. And they
know that I love them and will do anything to be with them as long
as I can. On a personal note, I do not feel any less of a woman. I
feel empowered that I made a strong choice that in no way
diminishes my femininity.
I am fortunate to have a partner, Brad Pitt, who is so loving
and supportive. So to anyone who has a wife or girlfriend going
through this, know that you are a very important part of the
transition. Brad was at the Pink Lotus Breast Center, where I was
treated, for every minute of the surgeries. We managed to find
moments to laugh together. We knew this was the right thing to do
for our family and that it would bring us closer. And it has.
For any woman reading this, I hope it helps you to know you
have options. I want to encourage every woman, especially if you
have a family history of breast or ovarian cancer, to seek out the
information and medical experts who can help you through this
aspect of your life, and to make your own informed choices.
I acknowledge that there are many wonderful holistic doctors
working on alternatives to surgery. My own regimen will be posted
in due course on the Web site of the Pink Lotus Breast Center. I
hope that this will be helpful to other women.
Breast cancer alone kills some 458,000 people each year,
according to the World Health Organization, mainly in low- and
middle-income countries. It has got to be a priority to ensure that
more women can access gene testing and lifesaving preventive
treatment, whatever their means and background, wherever they live.
The cost of testing for BRCA1 and BRCA2, at more than $3,000 in the
United States, remains an obstacle for many women.
I choose not to keep my story private because there are many
women who do not know that they might be living under the shadow of
cancer. It is my hope that they, too, will be able to get gene
tested, and that if they have a high risk they, too, will know that
they have strong options.
Life comes with many challenges. The ones that should not
scare us are the ones we can take on and take control of.
Angelina Jolie is an actress and director.
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