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孤独,有可能是种病

(2012-04-11 07:35:40)
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杂谈

分类: 读书札记

孤独,有可能是种病

美国畅销书作家John Elder Robison最近要来我们这里搞签名售书活动。据介绍,这位作家儿时患有交友障碍,父母为此头痛万分。后经诊断,他的交友障碍是因为他是阿斯伯格综合症(Asperger syndrome)患者。得这种病的孩子,有时候是以神童的形象出现的,并有孤独不合群等表现。由此看来,孤独,真有可能是种病。

John Elder Robison的简介来自网络:

 

{about John Elder Robison}

I was born in Athens, Georgia in the hot summer of 1957. My father was preaching in Ila — pronounced EYE-LA — Georgia, that summer. Both my parents were in college when I was born. We moved every few years while my father worked his way through college until finally settling as a professor of Philosophy in Amherst, Massachusetts.http://johnrobison.com/imgs/09kid.jpg

I was always a problem child — often sad, a loner, unable to make friends. My parents sent me to a number of different schools, and I saw many different therapists, but none of them had the answers. Some of them had some pretty strange ideas, though! My brother Augusten Burroughschronicled some of our family’s misadventures in therapy in his 2002 book,Running With Scissors.

The problem was, Asperger’s Syndrome had not yet been “discovered” as a diagnosis when I was a kid. My social disability was dismissed as laziness, or deliberate misbehavior. I dropped out of high school in the tenth grade.

http://johnrobison.com/imgs/09ampie.jpg

from left: Peter Frampton, John Regan, Tex Holmes, Ace Frehley and me.

Luckily, my Asperger’s gave me a rare insight into electronics. Using that knowledge, I joined a band, which led to a bigger band, which led to a bigger band… I ended up designing special effects guitars for KISS by the late 1970s. From there, I made the leap into a real job as an engineer with a major toy and game company. I moved up the corporate ladder for ten years, when I hit a wall.

By the late 1980s I had become a manager at a Boston electronics firm, but I was miserable. I had no idea how to fit into a corporate environment, and I felt sure my differences would mark me as a fraud, someone who should tossed in the street or worse. Finally, I had enough. I quit my job. I began fixing Mercedes and Land Rover cars in my driveway. I never had to worry about fitting in with the world of machines. Soon, I was immersed in them.

From that beginning, J E Robison Service grew into one of the most successful independent repair businesses in New England. We specialize in Mercedes, BMW, Jaguar, Land Rover, Rolls-Royce and Bentley motor car work. Our company is known nationwide for our restoration and customization work, especially on Land Rover, Rolls-Royce, and Bentley vehicles.

One day, a therapist with a lust for Land Rovers walked in the door at JE Robison Service, and we became friends. After studying me closely, he introduced me to Asperger's Syndrome, and the knowledge changed my life forever. It took some time, and a lot of hard work, but the knowledge of how and why I am different transformed my life.

Today, we know Asperger’s syndrome is one form of autism. The collection of differences are called the autism spectrum. Autism is at its heart a communication disorder or difference. Some autistic people have difficulty speaking, or understanding language. Asperger people tend to be blind to the unspoken cues of other people.

My memoir of growing up different was published in 2007. Look Me in the Eye was an instant bestseller which launched me on yet another career. Today it’s sold in over 20 editions in 70+ countries worldwide. My second book – Be Different – is now following in its footsteps.

I’ve found a new calling as a speaker and advocate for people with Asperger’s and other forms of autism. Read more about my speaking and workshops here.

The more I learned about autism and Asperger’s, the more I realized how diverse this autism spectrum really is. Science has identified a number of traits that tie us all together, yet on the surface we could not possibly look more different. There is no such thing as a “typical autistic person.”

Some describe us as gifted while others talk about disability. For every autistic person who has a family and a job, several others struggle but fail to attain those goals.

Seeing that, I began to understand the pressing need to develop therapies and services to help autistic people at all levels succeed in today’s world. At the same time, I realized the wider world needs us; and they need help understanding how to accommodate us and help us fit in.

In the past few years, I have become active on boards and committees of the National Institutes of Health, the Centers for Disease Control, Autism Speaks, and a number of universities and colleges. I have also developed graduate courses that are now part of the autism curriculum at Elms College here in Chicopee, Massachusetts.

With all that, I’m a pretty busy fellow. But through it all, my love of cars has not diminished. Whenever I’m not on the road, you’ll still find me in the shop, at JE Robison Service in Springfield.

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