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每个人都是“渐冻人”

(2010-11-09 15:52:32)
标签:

张红

渐冻人

运动神经元疾病

qq签名

神经纤维

情感

分类: 葡萄文稿

 get busy living or get busy dying.

 

其实每个人都是“渐冻人”,人的生命没有时间的预算。

 

中午午休吃饭的时候,看见一篇这样的文章:渐冻人张红——目睹自己美丽地死去:

 

 “医生断言,她活不过三年。而张红就这么扛过来了,几乎丧失全部行动能力的她,还“笔耕不辍”,每天800字。最近她张罗着开网店搞募捐,为条件差的ALS患者募集延续生命的呼吸机。”

 

加了张红的Q,但她显然忙碌不堪,Q已人满为患。

 

我想介绍她认识彬,彬活在黑暗里,虽然眼睛失明,但内心是光明的。他一直在寻找快乐的途径,也一直展示着他最阳光的一面。

 

为彬申请Q,是几个月前的事情,我记不清。

 

当我得知彬学会了靠听声音真正的盲打后,就为他迅速申请了一个QQ。我让他足不出户能认识更多的朋友。于是,我介绍了几个朋友给他认识,他加了水,加了毛毛,但也加了并不想和他说话的人,因为,并不是每个人都那么热心想帮助一个毫无利用价值的盲人。

 

彬开始写作,越来越快乐,靠着朋友送他的时常“生病”的电脑开始了他的网络生活。

 

彬和我很坦然地谈论死亡,已经是几年前的事情了。

 

很多次,他在鬼门关徘徊着又返回来。

 

他说,即使那一天来临你不许哭,你要笑,给我放欢快的乐曲。

 

我知道,哭是没有用的。但是,彬,你这家伙,即使那一天来临,我会笑得出来吗。

 

但是,我甚至不用忌讳彬看我的博客,他会跑进去留言,可以通过我的QQ签名知悉我的心情,偶尔会恶作剧一把。

 

他是懂我的。

 

我是懂他的。

 

还有水,和清韵姐妹俩。

 

更多的时候是她们俩在陪伴着彬,打发着他的寂寞。

 

但是,彬虽然寂寞,但不会落寞。

 

每每我在球场上大声呼喊的时候,每每我在KTV煽情讴歌的时候,每每我在各个不同的场所访谈不同的明星的时候……彬都在默默地坐在电脑前,关注着,微笑着。

 

我想让彬在有生之年体验更多难得的快乐,比如帮他找玉萨的碟子,比如请萨顶顶和他见面,比如带他听马克西姆的钢琴演奏……

 

其实,还有很多想法,没有能实现。

 

其实,岁月的流逝真是考察谁是你真正的朋友的最佳方式:当你光环褪尽的时候,TA还守候在你身边。

 

而很多人,见你黯然失色之时,悄然走开,甚至快速逃离。

 

然后,他们寻着其他方式玩乐去了,他们去为自己的人生目的或者目标忙碌去了……

 

所以,稍微寻思一下:每个人都是“渐冻人”,神经麻痹地游走在滚滚红尘之中,直至有一天,每一根神经不再能控制你的肉体,你的思维在萎缩、你的肉体在萎缩、直至一切碳水化合物合着精神世界一起灰飞烟灭……

 

人的生命没有时间的预算。

 

get busy living or get busy dying.

 

忙碌着生,忙碌着死。

 

 

 

名词解释:

 

 “渐冻人症”(ALS)是一组运动神经元疾病的俗称,因为患者大脑、脑干和脊髓中运动神经细胞受到侵袭,患者肌肉逐渐萎缩和无力,以至瘫痪,身体如同被逐渐冻住一样,故俗称“渐冻人”。由于感觉神经并未受到侵犯,因此这种病并不影响患者的智力、记忆及感觉。像人们熟知的一代理论物理学大师、科学巨匠霍金就是位“渐冻人”。

 

“ALS”Amyotrophic Lateral Sclerosis的简称,中文译为肌萎缩侧所硬化症(肌无力肌萎缩,重症肌无力),是一种运动神经元混乱疾病。

 

    由于尚未了解原因,这些神经细胞逐渐死亡,引起神经纤维死亡,从而引发通过神经纤维获得信息的肌肉失去功能。ALS患者发病的年龄从十几到八十几岁,中年晚期(55-65岁)是ALS的高发年龄段。通常ALS首先出现与四肢部分,发生虚弱、僵硬和抽筋现象,有时ALS也首先出现于嘴与喉咙处,使人难以正常发声,影响音量和音质。

 

Everyone is " ALS" (Amyotrophic Lateral Sclerosis)

Writing :Grapes

get busy living or get busy dying.

 

Actually everybody is "ALS", the person's life without time budget.

 

Noon nap time of have a meal, see an article this article: gradually freezing chines women zhanghong- see oneself beautiful to die:

 

"Doctor assert that she would survive for three years. But zhang so carry come over, almost lose all action ability," she continued, "earns every 800 words. She recently appealing to open up to raise, for shop.org poor condition of patients with ALS raise life prolonged ventilator."

 

Added zhanghong of QQ, but she was clearly very busy, QQ already overcrowded.

 

I'd like to introduce her know ag.bone, live in the darkness, ag.bone though eyes fail, but the heart is bright. He has been searching for happy way, also have been showing his most sunshine side.

 

Application for bin QQ, is a few months ago, I can't remember things.

 

When I know ag.bone learned eyes closed typing, for he quickly applied for a QQ. I let him stayed indoors can know more friends. Hence, I introduced several friends give he knew, he added “water”, add the“ maomao”, also added others,but many people don't want to talk to him, because, not everyone so enthusiastic wanted to help a no use value of the blind men.

 

bin began writing, more and more happy, by friends to send his often "sick" computer began his life online.

 

I talk about death and herself together, is already a few years ago.

 

Many times, he in guimen roamed in comes back..

 

He said:“If my dead, you are not allowed to cry, only smile, you give me put cheerful melody.”

 

I know, crying is useless. However, this guy, When that day comes, how do I laugh?

 

However, I don't even taboo ag.bone reading my blog, he would leave a message, can ran through my QQ signature aware of my mood, occasionally a prank.

 

He is understand me.

 

I am understand him.

 

There is “water”, and she  sisters.

 

Most of the time, is their a pair on the network to accompany him. Let him feel warm.

 

However, he although lonely, but  he won't endeared loneliness.

 

On the pitch when I cried out, when I in the KTV gushy eulogize, when I in different places interview different star...... bin all at silently sit in front of the computer, watching, smiling.

 

I want to make herself in lifetime experience more god-given happiness, such as help him find jade of asaph the CD, such as pizza specialists and see him please, such as taking him to listen Maxim playing the piano...

 

In fact, there are lots of ideas, not be achieved.

 

Actually, the passage of time is really examine who your real friends are the best way: when you auras disappear, He also waiting around you.

 

And many people, see you auras disappear, quietly away, even rapid escape.

 

Then they find other ways to play went, they go for his own life purpose busy......

 

So, think about: everyone is "gradually frozen people", nerve palsy to wander in surgent human society in, until one day, each nerve can no longer control of your body, your mind is declining, your body in atrophy, Until one day, everything carbohydrates fits the spirit world together to ashes...

 

Man's life without time budget.

 

get busy living or get busy dying.

 

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